Register now! BITSS 2019 will be July 28 - August 4

About the Program

The Boston International Turner Syndrome Summit is an eight-day residential summer program for young women with Turner syndrome between the ages of 12 and 19 in Boston, MA. The summit provides a healthy, social environment where young women with Turner syndrome can grow and form a community that will last far longer than eight days. During the summit, we explore Boston, take fun workshops that give our participants the chance to experience something new, and of course spend time together!

Keep reading to find out what we did in 2018! And you can click here to read about our other past summits and get a real taste of BITSS with our videos from 2016 and 2017.


The tuition for our 2019 program is $1,325. This cost includes housing and amenities, transportation in Boston, and all activities and attractions for eight days and seven nights.

Financial aid will be available on a per-case basis. If the cost is a hardship, we encourage you to fill out the 2019 Scholarship Application. In order to be considered for aid, you will need to complete the general BITSS registration form here as well. (The link to the scholarship application is also provided within the general registration form.)

If you would like to donate to our scholarship fund to help support those who would otherwise be unable to attend, click here.

2019 Program Highlights

    New England Aquarium

The New England Aquarium is the place for all lovers of sea life from the tiniest fishes and jellies, to penguins, fur seals, harbor seals and sharks! We'll see the four-story Giant Ocean Tank, three different species of penguines, and the Shark and Ray Touch Tank.

    Charlestown Navy Yard

We will see two cool ships in the Charlestown Navy Yard, and soak in (pun intended) the atmosphere. First, the USS Constitution, launched in 1787, and commissioned by George Washington himself. Then we fast forward to 1943, and visit the USS Cassin Young, a Destroyer that fought in seven Pacific battles in World War II and survived Kamikaze hits!

    BITSS Traditions

Over the last few years, BITSS has developed its own slew of awesome traditions.

  • Start the week off right with amazing, engaging games that break the ice!
  • Everyone's an artist at our yearly paint night!
  • Boogie the night away at an upbeat dance party!
  • Sing your heart out at karaoke!
  • Hang out at our pajama party movie night!
  • Chat with medical practitioners outside of the office at our doctor panel!
  • Speak with a new voice: your hands! (American Sign Language)
  • And yes, of course Ketty will be back for more Zumba!